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Cone-rod Dystrophies stories
I have this disease by birth. Help me
Hi I am the mother of a 8 year old girl. She was born with cone rod dystrophy. She uses magnification, wears a hat at all times, uses iPad. She is severely sensitive to light. Any help or suggestions would be appreciated.
Views: 545 Jul 27, 2016, 10:47 AM by Angie Bergherr
Views: 341 May 5, 2017, 4:01 AM by Bailee
Views: 278 Sep 12, 2017, 1:16 AM by Elijah
Hello together, who of you has already made a genetic test and which gene was discovered as defective? In my family it was a combination of two genes CDHR1 (previously known as PCDH21) and RGR
Views: 275 Aug 12, 2017, 9:50 PM by Anonym
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