World map of Cone-rod Dystrophies


Find people with Cone-rod Dystrophies through the map. Connect with them and share experiences. Join the Cone-rod Dystrophies community.

There are 124 people in the map. View Map of Cone-rod Dystrophies

May interest you


Cone-rod Dystrophies stories


CONE ROD DYSTROPHY BY BIRTH


I have this disease by birth. Help me

Views: 719 by Meghana Sruthi

PAYTON


Hi I am the mother of a 8 year old girl. She was born with cone rod dystrophy. She uses magnification, wears a hat at all times, uses iPad. She is severely sensitive to light. Any help or suggestions would be appreciated. 

Views: 545 Jul 27, 2016, 10:47 AM by Angie Bergherr

I HAVE CONE DYSTROPHY


Views: 341 May 5, 2017, 4:01 AM by Bailee

ELIJAH'S STORY


Views: 278 Sep 12, 2017, 1:16 AM by Elijah

GENE TEST


Hello together, who of you has already made a genetic test and which gene was discovered as defective? In my family it was a combination of two genes CDHR1 (previously known as PCDH21) and RGR

Views: 275 Aug 12, 2017, 9:50 PM by Anonym

View more

Cone-rod Dystrophies forum


There are not questions yet. Ask a question and get answers.

Ask a question and get answers from other users.

View more