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Crouzon syndrome stories
I was born with Cruzon Syndrome,there is 4 generations in my family,me being 2nd.
I had a lot of teasing at School,didn't have any confidence and didn't know anyone else with it.
Two of my children have it,and three of my Grandchildren,and two have...
Views: 893 Feb 24, 2016, 4:47 AM by Sharon Snipe
hola, mi nombre es Natalia , soy de argentina.. y mama de tres niños, julian victoria y ana paula. mi niña mas pequeña tiene crouzon....
Views: 828 Feb 23, 2016, 2:43 PM by Natalia
My son Anaston Roy he is 9 years old very claver we done two 8 hours operation. very sad to me and my wife because some time fits come to him we dont know when it come. Lefort Ill Mid face surgery till not do to him. he is very clavee and intelligent...
Views: 801 Jun 13, 2016, 11:42 PM by Daya Lucas
Good evening, my name is Khadija Riffi, I was born with Crouzon syndrome, now I have 30 years ..........
Views: 735 Feb 24, 2016, 12:59 PM by Khadidja
I was born normal, but eventually was diagnosed, it was hard for my parents but I was very young and was normal for me, time after I had hydrocephalus and johannesburg I operated with the valve Hackim after he tapo I play again operate, after that I ...
Views: 670 Mar 11, 2016, 12:55 PM by Byron Felipe
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