Stories of Crouzon syndrome

Crouzon syndrome stories
I was born with Cruzon Syndrome,there is 4 generations in my family,me being 2nd. I had a lot of teasing at School,didn't have any confidence and didn't know anyone else with it. Two of my children have it,and three of my Grandchildren,and two have...
Crouzon syndrome stories
hola, mi nombre es Natalia , soy de argentina.. y mama de tres niños, julian victoria y ana paula. mi niña mas pequeña tiene crouzon....
Crouzon syndrome stories
Hope one day  help aperts mom with their Surgery and support 
Crouzon syndrome stories
Good evening, my name is Khadija Riffi, I was born with Crouzon syndrome, now I have 30 years ..........
Crouzon syndrome stories
I was born normal, but eventually was diagnosed, it was hard for my parents but I was very young and was normal for me, time after I had hydrocephalus and johannesburg I operated with the valve Hackim after he tapo I play again operate, after that I ...

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Statistics of Crouzon syndrome

0 people with Crouzon syndrome have taken the SF36 survey. Mean of Crouzon syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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