CYSTINOZA FORUM

INFORMATION PROVIDED BY AMBASSADORS

Information about Cystinoza provided by ambassadors of the condition.

GENERAL FORUM

General forum of Cystinoza

RESEARCH / NEWS

The lastest on Cystinoza research. Share your finds with others.

TREATMENTS

Drugs, supplements, therapies and treatments based on scientific studies.

NATURAL TREATMENTS

Treatments scientifically not proven.

SYMPTOMY

Cystinoza symptoms. Share your symptoms with others.

CYSTINOZA RESOURCES

Useful Cystinoza resources. Blogs, websites, support groups, apps...

SICK LEAVE / DISABILITIES

Sick leaves and disabilities. Goverment support.

CYSTINOZA COMMUNITY

SUPPORT

Get support from others. Ask for help and help others.

INTRODUCE YOURSELF

Introduce yourself. Tell us about you.

PŘÍBĚHY

Vyprávějte váš příběh a pomozte ostatním

NEFROGENNÍ CYSTINOSIS FORUM

GENERAL FORUM

General forum of Nefrogenní Cystinosis

STŘEDNÍ CYSTINOSIS FORUM

GENERAL FORUM

General forum of Střední Cystinosis

NON-NEFROPATICKÁ NEBO OČNÍ CYSTINÓZA FORUM

GENERAL FORUM

General forum of Non-nefropatická nebo oční Cystinóza