> Cystinosis > Stories

Kimberly 10 years - Cystinosi girl

Kim is my doughter...she's 10 and she was diagnostic when was 10 months old.... we Live in a small village between the Alps, near the boundaries of Austria and Slovenia.

She is a very strong girl, she is a fighter.....  She is not very tall and now will start the GH for encrise her growth....

If some one need or would like to speak with us, please contact me also on FB at Laura Morocutti (Bond Imagine)

Kiss and hugs for all of you....

World map of Cystinosis


Find people with Cystinosis through the map. Connect with them and share experiences. Join the Cystinosis community.