Stories of Cystinosis

Cystinosis stories
My name is Denis and I'm father to two amazing kids with cystinosis aged 7 and 4.
Cystinosis stories
Kim is my doughter...she's 10 and she was diagnostic when was 10 months old.... we Live in a small village between the Alps, near the boundaries of Austria and Slovenia. She is a very strong girl, she is a fighter.....  She is not very tall and...
Cystinosis stories
My brother Andrew, 12, was diagnosed with Cystinosis in 2005 when he was one years old. my family is from Calgary, Alberta, Canada.  I am involved with the Cystinosis Research Foundation community (USA), C.A.R.E. - Cystinosis Awareness Research...
Cystinosis stories
My 12 year old son Caleb has cystinosis. 

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Statistics of Cystinosis

2 people with Cystinosis have taken the SF36 survey. Mean of Cystinosis is 2123 points (59 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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