Morgan

I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much information but told us as much as they could. We learned to cope. Two years on and we found the dandy walker pages on facebook, which felt like a huge weight had been lifted. We learned so much from others and we're reassured. We are still learning about dandy walker but would like to help others as best we can