> Devic Syndrome / NMO > Stories

Never ending daily battle

I first lost the sight in my left eye just after my first child was born, I have had optic neuritis 18 times in total going from one eye to the other, never both at once thankfully, I have lost the feeling from my waist down 3 times in total so far and I have also had a brain biopsy in 2015 due to my brain swelling, I still to this day have no idea why that happened. Since I have been on Retuximab for the last 3 years my disease has slowed down with little to no relapses

World map of Devic Syndrome / NMO


Find people with Devic Syndrome / NMO through the map. Connect with them and share experiences. Join the Devic Syndrome / NMO community.