A Dravet Syndrome story

When Sydnee was 5 she woke up one day and within an hour her life her life as she knew it would never be the same. Daily seizures would plague her life, medications would become the norm, hospital stays, doctor visits and intectual decline amongst other symptoms would take invade her life. She has failed 10 medications, a diet and alternative treatments. It would take 4 years before we recieved a diagnosis. There is very little direction with Dravet.