Not joined up

finger swelled for months after a thorn injury - repeated antibiotics made no difference. Lump appeared in Palm , followed by lump in foot. I worked out I have Dupuytrens and lederhose disease. However I have to see multiple different consultants and have GP refs. No one yet believes I have the condition and I think I will have a long journey getting any early diagnosis or treatment. I have a lot of years work left in me so o want to keep as able as possible, but that's not how the system works .