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Dyskeratosis congenita stories
At the young age of two, Rilee was diagnosed with Aplastic Anemia. Getting that news was pretty devastating and led to needing a bone marrow transplant in 2003. Little did we know, this began a long journey of many questions and few answers. In 2008,...
Views: 623 Feb 25, 2016, 8:59 PM by Rilee
She is 12 and was diagnosed when she was 8. She was born with symptoms, but it took 8 years to diagnose..
Views: 607 Feb 24, 2016, 7:15 PM by Gail
Lathyn was born May 16 2014 and was diagnosed with Dyskeratosis congenital and passed away 09/25/2015...This has taken a toll on his mother,father sisters and us the grandparents and family. We want to continue to in his memory to hold fund rai...
Views: 547 Feb 24, 2016, 6:05 PM by Annette
My son, Lathyn, was born May 2014, was diagnosed with Dyskeratosis Congenita July 2015 and passed away from it September 2015. His symptoms started at around 6 months which was a developmental delay, so he had an MRI done that showed he had vanishing...
Views: 476 Feb 24, 2016, 5:43 PM by Brittany
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