There are 27 people in the Dyskeratosis congenita map

Dyskeratosis congenita life expectancy

What is the life expectancy of someone with Dyskeratosis congenita?

Dyskeratosis congenita jobs

Can people with Dyskeratosis congenita work? What kind of work can the...

Dyskeratosis congenita sports

Is it advisable to do exercise when affected by Dyskeratosis congenita...

Living with Dyskeratosis congenita

How to live with Dyskeratosis congenita? Can you be happy living with ...

Stories of Dyskeratosis congenita

Dyskeratosis congenita stories
She is 12 and was diagnosed when she was 8. She was born with symptoms, but it took 8 years to diagnose..
Dyskeratosis congenita stories
At the young age of two, Rilee was diagnosed with Aplastic Anemia. Getting that news was pretty devastating and led to needing a bone marrow transplant in 2003. Little did we know, this began a long journey of many questions and few answers. In 2008,...
Dyskeratosis congenita stories
Lathyn was born May 16 2014 and was diagnosed with Dyskeratosis congenital  and passed away 09/25/2015...This has taken a toll on his mother,father sisters and us the grandparents and family. We want to continue to in his memory to hold fund rai...
Dyskeratosis congenita stories
My son, Lathyn, was born May 2014, was diagnosed with Dyskeratosis Congenita July 2015 and passed away from it September 2015. His symptoms started at around 6 months which was a developmental delay, so he had an MRI done that showed he had vanishing...

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Dyskeratosis congenita forum


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Statistics of Dyskeratosis congenita

0 people with Dyskeratosis congenita have taken the SF36 survey. Mean of Dyskeratosis congenita is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Dyskeratosis congenita