World map of Febrile infection-related epilepsy syndrome - FIRES


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Febrile infection-related epilepsy syndrome - FIRES stories


FIRES, A RARE DISEASE - ISA'S STORY


Views: 1648 Jun 22, 2022, 3:26 PM by Carla

ALEXIA (MI NIETA) SINDROME FIRES


Estando perfectamente bien de salud (la niña andaba bien comia de todo rara vez se ponia enferma, hablaba perfectamente) y con 2,5 años de edad sufrio su primera crisis. Tres dias anteriores habia sufrido una leve infeccion de garganta ...

Views: 749 May 9, 2016, 1:32 PM by martin

CRUEL DISEASES IS NOT GOING TO WIN


Sam was a happy 5 yo boy. 1st year at school , was a sport loving little cheeky kid in late July had a fever for a few days and went to school for 2 days Thursday Friday. on Saturday Sam had his 1st seizure about 1pm and from there the snowball gai...

Views: 555 May 24, 2016, 9:38 AM by Michael

STEFANIE'S STORY


6 years old male, over two month in Status Epileptikus

Views: 539 Sep 26, 2016, 8:48 AM by Stefanie

ABED MIRACLE BOY


My Son got FIRES 2 yrs ago when we were in Melbourne Australia, Due to my husband finished his study. Now we are back to Indonesia and ITS so hard to find SUPPORT for Him even some of HIS ,Meds we need to Import from Melb because some of them not ava...

Views: 534 Jun 10, 2016, 5:16 AM by Abednego

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