Help us to help more people
  2. Febrile infection-related epilepsy syndrome - FIRES
  3. Advice
Osteopathie
by Anouchka
Epidiolex (CBD oil) stopped seizures
by Chase
High does phenobarbital and IVIG broke status in acute phase
by Jax
Acute phase: IVIG and Ketogenic Diet
by Kael
Diet ketogenic(my 8yo boy affected)
by Michael
When nothing left for The doctor team to try to help me, I've got my Life back only by God's grace
by Abednego
son tres medicamentos, Cannabidiol sin THC,
by Ramses Ricardo
Know other parents with children with FIRES
by Carla
CBD - Cannabidiol
by Carla
Être dans un environnement joyeux
by Anouchka
High dose Phenobarbital broke status epilepticus
by Chase
Ketogenic diet for 2 years
by Jax
Chronic phase: Intractable Epilepsy and failed almost all meds for seizure control
by Kael
Having a routine
by Michael
My mum and dad and my sisters always figth with me day by day in my life
by Abednego
Pregabalina
by Ramses Ricardo
Doing therapies every day
by Carla
Therapies
by Carla
Avoir un programme régulier
by Anouchka
Ketogenic Diet
by Chase
Monthly IVIG infusions improved quality of life after acute phase
by Jax
Still being happy mostly and good motor skills (after everything)
by Michael
Keep faith that HIS grace always sufficient for me
by Abednego
Vribiact
by Ramses Ricardo
Introducing CBD to stop seizures
by Carla
My daughter's improvements
by Carla