Febrile infection-related epilepsy syndrome - FIRES
Cruel diseases is not going to Win
Sam was a happy 5 yo boy. 1st year at school , was a sport loving little cheeky kid
in late July had a fever for a few days and went to school for 2 days Thursday Friday.
on Saturday Sam had his 1st seizure about 1pm and from there the snowball gained momentum it was and is today the most gut wrenching painful thing I have gone through
my son I was not able to help for the 6 months we were in hospital. My eldest son asked me. Have I lost my brother . I told him no you haven't lost your brother you just have a new version of Sam which will have to adapt to.
i live by the motto "if you can't control your situation you need to embrace it,cause you cant live with hate and regrets
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