Living with FM

Histoplasmosis infection circa 1983. 16 years old. 50 now.

Very painful disease. Pulmonary hypertension. Enlarged heart. Limited in cardiovascular abilities extremely.
I had a pulmonary shunt with my left Pulmonary vein in 1997(moved the position of the vien to avoid future scarring). I have no idea if it worked. Winter time it is harder to move about, indoors or outdoors.

Mentally it's is a struggle. Shortness of breath, and extreme pain. You look totally normal. It's hard to explain to people. Sometimes it seems they think your are out of shape or faking it. So I try to keep up, but the pain is unreal.

I managed to work and achieve many things. I've never met anyone else with the disease.

I just stumbled across this site. I have conversed with Dr. Loyd at Vanderbelt in the past.

If you have questions, feel free to contact me,

Todd