Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.
May interest you
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE S...
Views: 857 Jan 31, 2016, 12:05 AM by Michelle Inks
I was diagnosed when I was in the 6th grade. It was my birthday when they did the x-ray. They sent me to the Oncologist to confirm it was FD and not cancer. I have FD in my Left Tibia. As of now, I have had 11 surgeries outpat...
Views: 807 Dec 22, 2015, 6:20 PM by Alexa
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Views: 769 Dec 19, 2015, 1:33 AM by Sandy
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab fri...
Views: 690 Feb 21, 2016, 5:36 AM by Helen Armstrong
www.nouw.com/deqora
Views: 632 Feb 23, 2016, 4:54 AM by Sandra
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have. There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ? I did not see McCune-Albright syndrome on the list.
Views: 604 Dec 19, 2015, 4:29 PM by denise
Ask a question and get answers from other users.