maxillary fibrous dysplasia

My name its Solly the father of the son born in 2008 February 22 who was diagnosed with maxillary fibrous dysplasia on the righthand side in 2012.We were advice that this will we treated at his adult age by doctors at Sefako Makgatho hospital after we have noticed the gradual grow on his face. Sadly in the family we all really affected by his condition, my son specially at school other children teasing his touched his self esteem terribly, and I am asking and request anybody who lives around Pretoria, in South Africa whom can refer us to doctors who can treat this horrible disease.