> Gastroparesis > Stories

Growing up with an invisible illness

I was diagnosed at the age of 8 with diabetes.  I was no longer to indulge in sweets of any kind during school parties.  Going Trick or Treating seemed like a waste.   I had a pretty normal childhood otherwise.   In high school,  I was not allowed to have any emergency supplies with me in case my blood sugar dropped too low.  This caused problems in one of my classes as I was not allowed to have a snack to prevent low blood sugars.  I started working after high school and finally met a boy that I was head over heels for.  I had always wanted a family of my own, so I started seeing a specialist to see if I could have children.   I was told it was not possible to have children with my diabetes.  I was devastated.   Two weeks later, can you guess the news I got?  Yep, not only was I pregnant,  but with twins.  I had a very easy pregnancy.   My blood sugars have never been better.  A couple years after my babies were born, I got the diagnosis of gastroparesis.   At that time it was very mild and not that concerning.  Fast forward many years, I met another man, who I married,  and we now have a baby together.  About two years ago, I started having problems with my reproductive system.   It caused me to have cysts removed and removal of one ovary and tube.  I started having problems with vertigo and was diagnosed with POTS.  My central nervous system started failing.  I kept having problems with my reproductive system and last year I had to have a total hysterectomy.  Since then, my gastroparesis had gone from mild to severe.   I am now fighting for disability.   I hope that I can putother people at ease with my story.  Even though it does not sound possitive, I have always been full of hope.

World map of Gastroparesis


Find people with Gastroparesis through the map. Connect with them and share experiences. Join the Gastroparesis community.