> Gestational trophoblastic disease > Stories

Choriocarcinoma in 2014 from complete mole with surviving twin

My baby was born full term and I wasn't diagnosed until she was 4 months old and after 12 hours of tests and misdiagnosis of a miscarriage,  a heavy menstrual cycle or another pregnancy. After I had a massive hemorrhage, one dr ordered a stat bhcg level. My levels were over 221,000. I had possible mestasis to right lung and begun chemo 2 days later. I had 4 rounds of Methotrexate, failed, and 8 grueling rounds of ema-co. I had 2 blood transfusions in my journey and a uti, to name a few. The only symptom that I had were contractions and then intermit bleeding. It's suspected that the choriocarcinoma was fully gestated around 24-27 weeks into my pregnancy. I'm still being monitored today. My baby will be 3 years old this September. 

World map of Gestational trophoblastic disease


Find people with Gestational trophoblastic disease through the map. Connect with them and share experiences. Join the Gestational trophoblastic disease community.