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Goldenhar Syndrome stories
I was born with GHS in 1971, but was not diagnosed until nine years later. I was born with a dermoid tumor on my right eye, ear tags on my right ear and a cats eye in my right eye. I had surgery to remove my dermoid when I was 9 years old.
Views: 513 Apr 16, 2016, 8:09 AM by Cathy
My 14 year old son is the one with goldenhar syndrome. He's had 2 reconstructive surgeries to make him an ear. He's got to have pallet repair then when he's 18 he will have jaw surgery.
Views: 499 Dec 26, 2015, 3:54 PM by Brandy
my daughter with her twin brother was in born 2014. She was diagnosed within days of her birth. She is a incredible fighter and has a contagious smile that lights up a room.
Views: 384 Feb 12, 2017, 12:58 AM by Sjo1970
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