There are 149 people in the Goldenhar Syndrome map

Goldenhar Syndrome life expectancy

What is the life expectancy of someone with Goldenhar Syndrome?

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Is Goldenhar Syndrome contagious?

Is Goldenhar Syndrome contagious?

Is Goldenhar Syndrome hereditary?

Is Goldenhar Syndrome hereditary?

ICD9 and ICD10 codes of Goldenhar Syndrome

ICD10 code of Goldenhar Syndrome and ICD9 code

Stories of Goldenhar Syndrome

Goldenhar Syndrome stories
My 14 year old son is the one with goldenhar syndrome.  He's had 2 reconstructive surgeries to make him an ear.  He's got to have pallet repair then when he's 18 he will have jaw surgery.  
Goldenhar Syndrome stories
I was born with GHS in 1971, but was not diagnosed until nine years later. I was born with a dermoid tumor on my right eye, ear tags on my right ear and a cats eye in my right eye. I had surgery to remove my dermoid when I was 9 years old. 
Goldenhar Syndrome stories
my daughter with her twin brother was in born 2014. She was diagnosed within days of her birth. She is a incredible fighter and has a contagious smile that lights up a room. 

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Statistics of Goldenhar Syndrome

2 people with Goldenhar Syndrome have taken the SF36 survey. Mean of Goldenhar Syndrome is 2243 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Goldenhar Syndrome