There are 165 people in the Goldenhar Syndrome map

Goldenhar Syndrome life expectancy

What is the life expectancy of someone with Goldenhar Syndrome?

3 answers
Celebrities with Goldenhar Syndrome

Celebrities with Goldenhar Syndrome

1 answer
Is Goldenhar Syndrome hereditary?

Is Goldenhar Syndrome hereditary?

2 answers
Is Goldenhar Syndrome contagious?

Is Goldenhar Syndrome contagious?

2 answers

Stories of Goldenhar Syndrome

STORY
Goldenhar Syndrome stories
I was born with GHS in 1971, but was not diagnosed until nine years later. I was born with a dermoid tumor on my right eye, ear tags on my right ear and a cats eye in my right eye. I had surgery to remove my dermoid when I was 9 years old. 
Goldenhar Syndrome stories
My 14 year old son is the one with goldenhar syndrome.  He's had 2 reconstructive surgeries to make him an ear.  He's got to have pallet repair then when he's 18 he will have jaw surgery.  
Goldenhar Syndrome stories
my daughter with her twin brother was in born 2014. She was diagnosed within days of her birth. She is a incredible fighter and has a contagious smile that lights up a room. 
Goldenhar Syndrome stories

Tell your story and help others

Tell my story

View more

Goldenhar Syndrome forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Goldenhar Syndrome

4 people with Goldenhar Syndrome have taken the SF36 survey. Mean of Goldenhar Syndrome is 1986 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Goldenhar Syndrome