I was born with GHS in 1971, but was not diagnosed until nine years later. I was born with a dermoid tumor on my right eye, ear tags on my right ear and a cats eye in my right eye. I had surgery to remove my dermoid when I was 9 years old.
I am currently working as a Craniofacial Awareness Advocate.
As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
2 people with Goldenhar Syndrome have taken the SF36 survey. Mean of Goldenhar Syndrome is 2243 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey