Research Opportunity!

Research Opportunity! The CARE Team at Seattle Children’s (Seattle, WA, USA) and the University of the West of England (Bristol, UK) are recruiting individuals and caregivers of children diagnosed with Goldenhar syndrome. We want to understand your experiences and the impact that your or your child’s diagnosis has had on all aspects of life. Our goal is to improve wellbeing and to make it the focus of the healthcare journey both now and in the future. Participation includes a one-time online survey. More information can be found at our website (https://www.thecarestudy.org/international-online-survey). Open to residents of the USA, Canada, UK, New Zealand and Australia.