> Hirschsprung Disease > Stories

Jackson's Story

Our family has had half a dozen cases of Hirschsprungs with only two survivors. Jackson has Total Colonic Hirschsprungs. He had his ileostomy bag removed at 6 months with a pull through and suffers from entrocolitis frequently. With monitoring his diet we are able to manage through some of the symptoms. Please reach out for support you aren't alone! 

World map of Hirschsprung Disease


Find people with Hirschsprung Disease through the map. Connect with them and share experiences. Join the Hirschsprung Disease community.