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Hydrocephalus stories
We found out at our 20 week anomaly scan that amelia-hope has spina bifida hydrocephalus and talipes. It was a very scary time. Amelia was born 20th august 2013 she had he back closure at 3 days old and she had her vp shunt fitted at 10 days old. Tou...
i got hydro due to a tumour in my brain which was discovered when I was 4years old. Had 25 years without complications, but then the shunt broke and I had 10 surgeries in 1,5 years. Many failures and infections. Now I have a VA-shunt since Nov-14. I ...
Views: 531 Jun 9, 2016, 3:28 AM by Emma
I developed Hydrocephalus in 2010 and it has made me A lot Stronger. I have met so many people online who also have the Condition or a Loved one so now I see that I am not alone. My Life has changed so much, Because I also had 2 Brain Surgerys in the...
Views: 518 Jun 9, 2016, 10:34 AM by Ravin Marie
I have had hydrocephalus since I was 9 months old, after contrating meningitis. I had a revision at 5 years old and 13 years ol. I had the shunt removed in 2013. I am 4 clases from starting my diseataion an I am a full time security...
Views: 515 Jun 8, 2016, 2:16 PM by Joseph
I was born April 1982 with hydrocephalus. I had first op aged 6 months old. I am now 34 and have had 12 surgeries to date. I consider myself lucky as i really have no restrictions due to my hydro. I like running half and full marathons for charity.
Views: 493 Aug 8, 2018, 2:14 AM by William
Hydrocephalus forum
Anyone with successfully treated low pressure hydrocephalus? What did they do?
Views: 466 Jun 8, 2016, 9:23 PM by Cheryl
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