We found out at our 20 week anomaly scan that amelia-hope has spina bifida hydrocephalus and talipes. It was a very scary time. Amelia was born 20th august 2013 she had he back closure at 3 days old and she had her vp shunt fitted at 10 days old. Tou...
i got hydro due to a tumour in my brain which was discovered when I was 4years old. Had 25 years without complications, but then the shunt broke and I had 10 surgeries in 1,5 years. Many failures and infections. Now I have a VA-shunt since Nov-14. I ...
I developed Hydrocephalus in 2010 and it has made me A lot Stronger. I have met so many people online who also have the Condition or a Loved one so now I see that I am not alone. My Life has changed so much, Because I also had 2 Brain Surgerys in the...
I have had hydrocephalus since I was 9 months old, after contrating meningitis. I had a revision at 5 years old and 13 years ol. I had the shunt removed in 2013. I am 4 clases from starting my diseataion an I am a full time security...
I was born April 1982 with hydrocephalus. I had first op aged 6 months old. I am now 34 and have had 12 surgeries to date. I consider myself lucky as i really have no restrictions due to my hydro. I like running half and full marathons for charity.
20 people with Hydrocephalus have taken the SF36 survey. Mean of Hydrocephalus is 1714 points (48 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
