Stories of Hydrocephalus

Hydrocephalus stories
Spina bifida is an abnormality of the nervous system that occurs in a baby's development during the first month pregnancy. Most textbooks define spina bifida as a neural tube defect or a gap in the fusing of the neural tube that encloses the spinal c...
Hydrocephalus stories
I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much informati...
Hydrocephalus stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
Hydrocephalus stories
We found out at our 20 week anomaly scan that amelia-hope has spina bifida hydrocephalus and talipes. It was a very scary time. Amelia was born 20th august 2013 she had he back closure at 3 days old and she had her vp shunt fitted at 10 days old. Tou...
Hydrocephalus stories
I was born April 1982 with hydrocephalus. I had first op aged 6 months old. I am now 34 and have had 12 surgeries to date. I consider myself lucky as i really have no restrictions due to my hydro. I like running half and full marathons for charity.

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Hydrocephalus forum

Question 320
 Anyone with successfully treated low pressure hydrocephalus?  What did they do?

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Statistics of Hydrocephalus

7 people with Hydrocephalus have taken the SF36 survey. Mean of Hydrocephalus is 1487 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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