Hopeful for change
I am adopted - a trans-racial adoptee - and am part of a blended family. I am the only African child, but have three siblings - brother and two sisters. I am the only one with Hyper IgE. I have no knowledge of my biological parents' medical history.
I am being treated currently by Ped Dr Paul Sinclair at a local hospital. He took over my case after our local GP couldn’t help any longer. I have always had problems with my skin – eczema, recurrent staph infections (scalp particularly) and allergies.
Dr Paul has worked very closely with an allergy expert in the hospital and he has diagnosed me with Job’ Syndrome / Hyper IgE and we have started a treatment of Xolair. I am about to have my 5th treatment (150mg a month). But so far there is no difference in my IgE count. But my energy levels have improved so that’s a good thing.
I am fortunate to have found a local company that makes dairy free sugar free candies (hard) and chocolate. Best part is – it tastes just like chocolate!!
Find people with Hyper IgE Syndrome through the map. Connect with them and share experiences. Join the Hyper IgE Syndrome community.