Hyperekplexia

i developed what the Drs thought was epilepsy at 22 years of age. My symptoms have changed over the years to the stage where a fright makes me seize and fall, aslso don't even need noise these episodes just happen, I can have 1 a day to 10 or more a day never know what my day is going to bring. I have my specialists stumped he has said tat may no meds will control me so just need to keep me safe. My meds at the moment are Keppra and Clonazepam but still not controlling me. I get really frustrated at not being able to do the littlest thing like go for bike ride, and a big thing .. Work because I'm a Health and safety risk due to my unpredicted episodes.