Ambers journey
I ha e been dealing with IH for 10 years before being diagnosed. Started when I was 19 and having a hard time staying away while driving and only got worse as time went on. Many many test and many army doctor not listening or just putting it up to another tired mom. It wasn't until I saw a doctor off post one who actually listened and was conceived that a sleep study was ordered and I got diagnosed with IH. Now im learning about IH and things I can do that might help.
Find people with Idiopathic Hypersomnia through the map. Connect with them and share experiences. Join the Idiopathic Hypersomnia community.