Which advice would you give to someone who has just been diagnosed with Intracranial Hypertension?

See some advice from people with experience in Intracranial Hypertension to people who have just been diagnosed with Intracranial Hypertension


Advice for Dealing with Intracranial Hypertension



If you have recently been diagnosed with Intracranial Hypertension (IH), it is understandable that you may be feeling overwhelmed and concerned about what lies ahead. IH, also known as pseudotumor cerebri, is a condition characterized by increased pressure within the skull. While it can be challenging to navigate this diagnosis, there are several steps you can take to manage your condition and improve your quality of life. Here is some advice to help you on your journey:



1. Educate Yourself



Knowledge is power, so take the time to learn about IH and its symptoms, causes, and treatment options. Understanding your condition will empower you to make informed decisions about your health and actively participate in your treatment plan. Consult reputable medical sources, speak with your healthcare provider, and consider joining support groups or online communities where you can connect with others who have IH.



2. Establish a Strong Support System



Building a support network is crucial when dealing with any health condition. Reach out to your family, friends, and loved ones to let them know about your diagnosis. Their understanding, empathy, and support can make a significant difference in your journey. Additionally, consider connecting with support groups or seeking counseling to help you cope with the emotional challenges that may arise.



3. Follow Your Treatment Plan



Adhering to your prescribed treatment plan is essential for managing IH effectively. Your healthcare provider may recommend medications to reduce intracranial pressure or suggest lifestyle modifications to alleviate symptoms. It is crucial to take your medications as prescribed and attend all follow-up appointments. If you have any concerns or experience side effects, don't hesitate to discuss them with your healthcare provider.



4. Make Lifestyle Changes



Adopting a healthy lifestyle can have a positive impact on your overall well-being and IH symptoms. Maintain a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Regular exercise, as approved by your healthcare provider, can help manage weight and improve circulation. Adequate sleep and stress management techniques, such as meditation or deep breathing exercises, may also be beneficial.



5. Monitor Your Symptoms



Keep a symptom diary to track any changes or patterns in your symptoms. Note the severity, duration, and potential triggers of headaches, vision problems, or other IH-related symptoms. This information can help your healthcare provider assess your progress and make necessary adjustments to your treatment plan.



6. Protect Your Vision



Regular eye exams are crucial for individuals with IH, as increased intracranial pressure can affect vision. Schedule routine appointments with an ophthalmologist to monitor your eye health and detect any potential complications early on. If you experience sudden changes in vision, such as blurred or double vision, seek immediate medical attention.



7. Seek Emotional Support



Living with a chronic condition like IH can take a toll on your emotional well-being. It is essential to prioritize your mental health and seek professional help if needed. Therapists or counselors can provide guidance and support as you navigate the emotional challenges associated with your diagnosis.



8. Stay Positive and Seek Balance



Maintaining a positive mindset can make a significant difference in how you cope with IH. While it may be challenging at times, try to focus on the aspects of your life that bring you joy and fulfillment. Engage in activities you enjoy, spend time with loved ones, and pursue hobbies or interests that make you feel good. Remember to pace yourself and find a balance between rest and activity to avoid exacerbating your symptoms.



9. Communicate with Your Healthcare Provider



Open and honest communication with your healthcare provider is crucial. If you have any questions, concerns, or experience new symptoms, don't hesitate to reach out. Your healthcare provider is there to support you and ensure you receive the best possible care. Regular check-ins and updates will help them monitor your progress and make any necessary adjustments to your treatment plan.



10. Stay Hopeful



Remember that you are not alone in your journey with IH. Many individuals have successfully managed their condition and led fulfilling lives. Stay hopeful and optimistic about your future. With the right treatment, lifestyle adjustments, and support, you can effectively manage your symptoms and maintain a good quality of life.




While this advice provides a general overview, it is important to consult with your healthcare provider for personalized guidance and recommendations based on your specific situation. They will be able to tailor a treatment plan that suits your needs and monitor your progress closely. Remember, you have the strength and resilience to navigate this journey and live a fulfilling life despite your diagnosis.


by Diseasemaps

Do not read about it on google. It will make you think you are dying

2/21/17 by Kate 1052

Lean on a strong support group who understands the condition. Family and friends should do the same so they can understand how best to support the sufferer

2/21/17 by Colleen 1000

Breathe. It's not the end of the world. It sucks sure. You're not going to be down forever. Breathe. You don't have to accept the first dr. You can seek second options. Look at online forums. Ask questions. Finding a Dr who sees you as a person and not a paycheck or a disease #.

2/21/17 by Deirdra 1000

If you have just been diagnosed with IIH then the main thing is don't worry too much. It's a horrible condition and as a fellow IIH-er, I completely understand how you are feeling but there are ways to live a good life and to be happy even with IIH. I was diagnosed 6 months ago so it's still kind of new. You are not alone, there are so many people that you don't know who are experiencing the exact same thing. It's okay to rant and be angry, it's okay to cry. It's okay to have good days and bad days. It's okay to have a day in bed. It's okay to cancel dinner that day. It's okay to have a full nights sleep and still have to have a nap late afternoon. People cannot expect you to be happy 24/7 with this condition as it takes the life out of you. But please be happy, please make the most out of your life. Please continue to be kind. You are a wonderful person and you are going to fight this and come out on top. Support groups and chats like these really do help. To read a post where someone is feeling the exact same thing can sometimes be a weight lifted. You are an amazing person who's been dealt a horrible set of cards but only because you are strong enough to handle this. Please reach out to people because it helps so much.

2/21/17 by livvdeluca 350

Take it slow . Don't overwhelm yourself with info on the internet. Every person is different and unfortunately there is no guidebook that works for everyone. Some benefit from medicines ( diamox, lasix, topamax) others get therapeutic spinal taps scheduled to relieve the pressure. For me I did not get true relief until after my vp shunt, but it is still not a cure all and whole new thing your body has to adjust to ( and can also bring its own problems ) Just take it one day at a time

2/21/17 by Bloomingbeauti 1102

This is not the end of the world. It may feel as though it is but it truly, truly isn't. This condition is manageable, treatable and sufferers are able to live a full, happy and satisfying life. There are many support groups and charities available for sufferers and I encourage you to reach out to as many of them as possible. They have been an invaluable resource to me and I have made some lifelong friends through them. Please do not feel alone and please do not worry or stress yourself out. This will pass.

2/21/17 by Amy 1495

Go to the internet and join a support group. Read as much as you can about the condition. Educate yourself. Ask as many questions as you want to your doctor or treating physician.

2/22/17 by Alet 1002

Don't get overwhelmed as there will be tons of information to learn, tons of doctors who will tell you that you are crazy before you find one who will try to help you and tons of people belittling just how much you suffer on a daily basis. Don't give up. Know that there are people just like me who are fighting for every minute we breathe just to be able to smile and endure the next minute.

2/23/17 by Diane 1053

Be proactive! There's no cure her but you can manage your symptoms and high pressure levels. Stay connected with all of your doctors!

2/24/17 by Maryssa 2100

Be your own advocate. Get copies of all your medical records. Don't get overwhelmed. Breathe. Join a support group.

8/12/17 by Christy 850

Hang in there. You're not alone.

8/13/17 by LaurynPatterson 1750

Hang in there! It isn't the end of the world but life as you know it will change. It is going to be okay. Listen to your body!

8/15/17 by Mommy2Five 1500

At first it was quite scary and I researched it. But go on the websites they are very helpful. You are not alone. Through Facebook they chat and answer questions. Because it is very very horrible at first.

8/15/17 by Lynne 1600

Do your research and know your body. Also never be afraid to stand up for what you want with your doctors. Doing those things will help you with this process and in choosing a treatment plan for you

8/18/17 by Unique cheatom 2120

You will have your bad days and good. As someone who has battled this for 17 years and acquired it from an allergic reaction to an antibiotic I took in high school, it really is about the mindset you have with dealing with it. You are not alone. I've been down the drug route, the surgery route and the natural path route. If you have the desire to lead a better life you will. No two people will have the same experience but you will find someone that understands the struggles and offers different ideas to combat this. Don't be afraid to say no to doctors and seek different medical opinions. You have to be your own advocate. We are strong people who live daily with a painful, debilitating condition that makes us stronger than the average

9/10/17 by Dawn 150

Look for as much information as you can find groups with others who have the condition and know your not alone

10/18/17 by Sara 2000

take each day at a time. find which meds work for you personally

10/19/17 by Julie 2000

Your not alone, listen to other stories to learn. don't be afraid the same things will happen to you. everyone is different. LP is a picture of your intracranial pressure of one moment in time. research an be your own advocate, be sure to let all the doctors know your meds an med history as well as current symptoms. (even those you may think are not related.

10/28/17 by lisa 3365

Don't overexert yourself, it's not your fault. I would have stressed less.

10/29/17 by So 2000

Find out as much as you can about your own condition. Record everything. Ask questions. Don't take no for an answer. If you're not happy, keep trying. Everyone's journey is different. You are the only one who knows your body and is living with your pain. Trust yourself and your gut instinct. Be your own advocate.

2/18/18 by Kelly 2560

Don't read all the negative stories, there are positive ones as wel

9/14/18 by Michelle 2050
Translated from spanish Improve translation

Follow step-by-step to what the doctors say and at the least symptom of recourse to a medical facility

6/7/17 by Lo. Translated

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