> Kawasaki Disease > Stories

Lost...

Hello to all, I am Ebony and my son Nick was diagnosed with KD at the age of 6 in 2014, he started out sick with headaches and stomach pain that led to vomiting and sweats that lasted for over a month before a dr was able to diagnose him, by the time he was diagnosed he had every symptom the red eyes, strawberry tongue, skin peeling, swollen lump nodes, fever even reach 104 it caused sizures, so he was rushed to CHOA where he spent alil over a week in the hospital where he recieved IVIG treatments along with Keppra for the sizure, and topimax for the headaches, he is now 8 yrs old and although he is better there are still after affects like joint pain, still has the headaches, and we still monitor his outdoor activity!! Hope this helps someone!!! And I was told that KD is most common in children of Korean, Asian and Spanish decent well my son is mixed I come from a African American background and his father is Spanish and Black

World map of Kawasaki Disease


Find people with Kawasaki Disease through the map. Connect with them and share experiences. Join the Kawasaki Disease community.