Klippel-Trénaunay-Weber Syndrome
The way i was born with KTWS
Hi my name is Monet Pavey, i am 11 yrs old and was born with ktws. It affects my left leg. i am lucky as both of my legs are the same size. i wear a compression badage during the day to keep me safe from bleeding and the swelling down. The pain is a little less. I have a very normall life and i know im special. Nothing holds me back. I can run where as the doctors told my mum that i may not walk.
If you are reading this and live in NZ plaese contact me as i would love to share my condtion. Phone 098323969 or mb 021820252.
my mums name is Mrs Antonia Freeth. Thanks love to all xxx
Monet
xx
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