> Lemierres syndrome > Stories

A Lemierres syndrome story

I was only diagnosed in August, which took them 6 months from when I was hopitalised! 

I'd initially had severe tonsillitis which penicillin got rid of but this overlapped with other symptoms. 

I made repeated trips to the Dr with a sore neck and headaches but was told it was a ripped neck muscle and was put on muscle relaxants and diazepam. This continued for 6 weeks until I lost my hand eye coordination at work and scared everyone as I became very confused. I went straight to A&E where they checked my eyes and a blurred optic nerve was spotted. This led to an MRI scan where they spotted what they thought was bleeding on the brain. A CT scan revealed extensive clotting in my jugular, sigmoid, transverse, saggital and lateral sinuses. 

5 days in hospital where I was on clexane for 2 weeks which overlapped with warfarin and I stopped the anticoagulant treatment in November after 10 months. They've said its not worth doing another scan as it'll show no changes until after around 4 years, although my jugular vein clotting has fully cleared with the other sinuses still blocked. 

I came down with tonsillitis again a few weeks ago and was given an emergency appointment at the Drs and put straight onto penicillin. The infection cleared with no complications this time. 

 

World map of Lemierres syndrome


Find people with Lemierres syndrome through the map. Connect with them and share experiences. Join the Lemierres syndrome community.