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Lesch-Nyhan Syndrome stories
Hi All,
This is crystal stovall, I have a son named Glennden with lns, I also Had a brother named James whom passed at the age of 29 with lns. Glennden is 10 years old and was diagnosed at 6 months of age. His First extraction of his tee...
Views: 881 Dec 31, 2015, 9:36 PM by Glennden stovall
Hi my son is Nicky he was diagnosed with lns at the age of 3. He is a wonderful child whose world is pretty much dominated by lns. He's had dbs which helps a great deal but we do still struggle.
Views: 373 May 26, 2017, 6:31 PM by Nicky
Hi my son Jack who is 3 was diagnosed with lns in January 2017. He is a bright little boy who makes anyone he comes across smile. His daily meds include allpurionol, potassium citrate, gabenpentin, and sleeping tablets as he is the worst sleeper.&nbs...
Views: 345 May 26, 2017, 5:26 PM by Carly
Giles is my first born son.He was breach presentation and delivered by c section. He was so miserable as a baby and not passing the standard child development milestones. Because we had private medical insurance we were able to get accesss to a paedi...
Views: 344 Aug 22, 2017, 5:31 PM by J Martin
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