The long and winding road

Giles is my first born son.He was breach presentation and delivered by c section. He was so miserable as a baby and not passing the standard child development milestones. Because we had private medical insurance we were able to get accesss to a paediatric consultant and MRI scans quickly.

aged 10 months after a week of tests at GOSH he was diagnosed with Lesch Nyhan Disease - this was just the start

I had a brother who was diagnosed with spastic cerebral palsy who died aged 8 years old in 1958

To be continued