Lupus

> Lupus > Stories

My journey thus far

I was diagnosed in 1997 after post op pneumonia. It's been pretty unremarkable (slight kidney involvement and thombocypenia) until 2010. During this time I never took medications to treat it.

2010 I had simple surgery and ended up with a Staph UTI from the catheter. 8 weeks of treatment at home, my Lupus was not involved, but I was having 40 degree temps. Hospitalized and I advised I had lupus and it would require treatment as it can be a opportunist. The hospital was not worried, 2 weeks in of my stay, I had odema, and things just got worse until they placed me in a induced coma for 2 days, I awoke to a EGFR of 13% and 20% of heart function, ds DNA of 45. My specialist advised that I would never get more than a EGFR of 30 and my heart would be permantly damaged.

Fast forward to 2016 and I have a EGFR of 50% and my heart is near normal :D

World map of Lupus

Find people with Lupus through the map. Connect with them and share experiences. Join the Lupus community.

Related books

The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families

The Lupus Encyclopedia is an authoritative compendium that provides detailed explanations of every body system potentially affected by the disease, along with practical advice about coping. People with lupus, their loved ones, caregivers, and medical professionals―all will find here an invaluable resource. Illustrated with photographs, diagrams, and tables, The Lupus Encyclopedia explains symptoms, diagnostic methods, medications and their potential side effects, and when to seek medical attention.

The First Year--Lupus: An Essential Guide for the Newly Diagnosed

Lupus affects an estimated 1.5 million people in the U.S.—90 percent of whom are women—but due to the diversity of its symptoms and severity, it remains one of the most difficult conditions to identify and diagnose. In the tradition of the other titles in the First Year™ series, The First Year™—Lupus uses a unique approach—guiding readers through their first seven days following diagnosis, then the next three weeks of their first month, and finally the next eleven months of their first year—to provide answers and advice that will help everyone newly diagnosed with lupus come to terms with their condition and the lifestyle changes that accompany it.

The Lupus Book: A Guide for Patients and Their Families

Lupus, a disease of the immune system, can be quite deadly, claiming the lives of thousands of patients yearly. Dr. Daniel J. Wallace is one of the world's leading authorities on this disorder, an eminent clinician who has treated over 3000 lupus patients, the largest such practice in America. His The Lupus Book, originally published in 1995, immediately established itself as the most readable and helpful book on the disease.

What is the life expectancy of someone with Lupus?

Is Lupus contagious?

What are the best treatments for Lupus?

Which are the causes of Lupus?

Which advice would you give to someone who has just been diagnosed with Lup...