A Lupus story
After ten years of wrong diagnosis, with the help of a private doctor, I could finally put a name to what i have been suffering for real. Here is the links of the struggle of most who suffer from rare medical conditions;
https://anshikasawaram.wordpress.com/2014/09/30/medical-institutions-and-services-which-cost-you-your-life/
https://www.facebook.com/photo.php?fbid=10203690198246102&set=a.1503231591375.2064867.1551803088&type=3&theater
https://www.facebook.com/photo.php?fbid=10205680741448438&set=a.1503231591375.2064867.1551803088&type=3&theater
https://www.facebook.com/photo.php?fbid=10205905312062563&set=a.1503231591375.2064867.1551803088&type=3&theater
https://www.facebook.com/photo.php?fbid=10205996323577794&set=a.1503231591375.2064867.1551803088&type=3&theater
In this quest, I vowed to learn and research about Transverse myelitis and Systemic Lupus Erythematosus to better help those sailing the same ship as me.
After I publicly came out about my medical conditions,( https://www.facebook.com/photo.php?fbid=10203615819506680&set=a.1503231591375.2064867.1551803088&type=3&theater ), I am more often contacted by people who feel and live the same on facebook. Most of the times, I have benefited from lending an ear and a hand as this is how I achieve my goal, that of building an awareness community about invisible diseases.
I am inviting and requesting Mauritians who are patients, have a family members, friends or acquaintances who suffer from chronic and rare diseases to please answer this survey on http://www.diseasemaps.org/en/. I will be so grateful and thankful , as this data will be of great help for coming projects.
You can choose to answer anonymously and get in touch with me via facebook (Anshika Sawaram), about anything related to the same issue.
Thank you and take care.
Find people with Lupus through the map. Connect with them and share experiences. Join the Lupus community.
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The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families
The Lupus Encyclopedia is an authoritative compendium that provides detailed explanations of every body system potentially affected by the disease, along with practical advice about coping. People with lupus, their loved ones, caregivers, and medical professionals―all will find here an invaluable resource. Illustrated with photographs, diagrams, and tables, The Lupus Encyclopedia explains symptoms, diagnostic methods, medications and their potential side effects, and when to seek medical attention.