> McCune Albright > Stories

My life

Dear All ,

I discovered my disease  when i was 19 years old.

I had strong and frequent headaches and , after a clinical examinations,   the diagnosis was a fibrous dysplasia of the skull.

AFter a few years , unfortunately I discovered have it also the ribs, tibia and lumbar belt.

I have a lot of pain and, in acute moments , i take pain medication.

I don't know what will appen in the future, if a future pregnancy could cause tererioration.

I hope not to worsen.

If you have a similar story please, contact me.Regards

 

World map of McCune Albright


Find people with McCune Albright through the map. Connect with them and share experiences. Join the McCune Albright community.