A Medullary Sponge Kidney story
I was diagnosed with medullary sponge kidney in August of 2016. I have been struggling with symptoms since 2009, my freshman year of high school. I spent years of having tests done, and no answers. And ever tests done for my kidneys. It was always my stomach. Scopes, blood work, ultrasounds, and no answers. At this point in time, I had been getting UTI's like crazy. And passing kidney stones unknowingly. I was always told it was my stomach so all the pain I had been experiencing, I assumed was just stomach complications. Until finally one day I was rushed to the ER, and figured out that it was not stomach pains after all, but kidney stones. I was sent home that day, with a bottle of narcotics and nausea meds. These stones and infections had been occurring more and more. The doctors would not diagnose me with anything though. I had gone into the ER again one night and had a CT done. The radiologist had discovered little sacs of calcium build up in my kidneys. From there, I was sent to a nephrologist. But never got any answers from them. The possibility of medullary sponge kidney was brought up, but never actually diagnosed by him. Months passed and I had taken a trip to Virginia. There, I had dealt with many health complications. Finally I saw a specialist down there, where he confirmed and diagnosed me with medullary sponge kidney. From there, I returned back to Michigan, and set up an appointment with a urologist. After a 6 month wait for that appointment, I told him my diagnosis, and we scheduled surgery to have a stent placed. The first surgery I ended up getting an incredibly bad infection and was in the hospital for a week. Then I had to go back again 3 weeks later for a second surgery. All has been decent since then. Until recently things started getting bad again. I have another surgery for the end of the summer scheduled, and I will just be going from there.
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