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My survivor princess (Moebius Syndrome)

I am very worried and happy at the same time when i gave birth to my princess, she is alive but she is in comatose condition for 5days...and stay in the hospital for 27 days. Prayers is always my shield when she is chocking to death and no one is helping me or teaching me how to feed her because of her syndrome, she have sucking problems. I thought that we cant make it,but now you are very beautiful young lady.
I seek for other family with same condition and now we are growing here in Philippines and give relief and comfort to other family with same condition. We are now 90 families with moebius here. And I continuing to communicate with them, and educate them about moebius syndrome and spreading the awareness.
I can see their smile from their heart..
Moebius syndrome is just a disease of inability to smile but have ability to give smile on other peoples faces.
Thank you
Maridel Carapatan

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