Stories of Moebius Syndrome

STORY
Moebius Syndrome stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
Moebius Syndrome stories
It took me 22 years to get the diagnosis for a condition that was visible and written in medical literature since 1888. That's a whole BOOK on aloneness! i went into teaching and taught for 43 years. Lots of advocacy! A few more books here! And I'm...
Moebius Syndrome stories
My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have chi...

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Statistics of Moebius Syndrome

1 people with Moebius Syndrome have taken the SF36 survey. Mean of Moebius Syndrome is 2570 points (71 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Moebius Syndrome

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