It took me 22 years to get the diagnosis for a condition that was visible and written in medical literature since 1888. That's a whole BOOK on aloneness!
i went into teaching and taught for 43 years. Lots of advocacy! A few more books here!
And I'm...
My first grandchild was born with Moebius Syndrome. He is 9 months old. He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17. I would like to get to know other family members who have chi...
2 people with Moebius Syndrome have taken the SF36 survey. Mean of Moebius Syndrome is 2595 points (72 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey