my moms 10 year fight still going
My mom has had MSA for 10 years. She's been in a nursing home for 4 years. It's the worst nightmare I could ever imagine. She is still fully aware and alert. She cannot move. She cannot eat. She lost her vocal ability 2 years ago. She can't write because she can't move her arms. The worst is sitting with her and not hearing her talk. We use a letter board. I don't know how she hasn't given up. She is my hero and inspiration.
Find people with Multiple Systems Atrophy through the map. Connect with them and share experiences. Join the Multiple Systems Atrophy community.