Advice of Multiple Systems Atrophy

Please stay in touch with Multiple System Atrophy Coalition www.MultipleSystemAtrophy.org

by Pam Bower

Getting outside and walking, either with my rolleator or cane. Now up to 3000 steps a day. I will be increasing to 5000 soon.

by Trish

aphomorfine in continous infusion

by rita

Depends or always underwear

by JoAnn

My sister Diana, she always stays positive.

by Cherilyn

Resting after a day of adventure

by Diane Graham

Regular physical exercise

by David Adkins

Keeping moving. I cycle on my adult tricycle every other day. I go to the gym and lift weights 5 times a week. I try to walk 6-8 blocks a day.

by Jim

Supportive friend

by For Kim deceased 2014

Hospice

by Helen

My support system, husband, and children

by Nikki

Family support and loving caregivers in my home

by D. Parshall

Keep moving even when you feel bad.

by Tim Tingle

Finding doctors who understand the disease

by Silver

Knowlegable Doctor

by Ian

For when you get food stuck in your throat.. Have some jello with mandarin oranges in it... Helps to move the food down.

by Kate

exercise

by shannon doucet

First, I believe having someone, my caregiver, assist me to research this disease, understand it, document doctors meetings, and adhering to the medicine prescribed by the doctors. carbidopa/Levodopa helped make a difference with my balance and coordinat

by Dan Gallivan

physical therapy

by James

Having a pacemaker implanted changed my life tremendously.

by Tanya

Air conditioning

by Ros Davies

Positive attitude

by Susan

As a carer I was/am very empathetic & patient.

by Linda

Accept it, life Goes on, listen to your body

by Cathy

My wonderful Husband...because he's so loving & caring without him i'd be lost as he helps me with everything

by Nan Turner

Very disabled mother. Regular massage seems to help

by Ziva

Being diagnosed by a neurologist who was familiar with the disease.

by Arthur

Exercise. Kept me alive (expected expiry 2010-2013http://kathyjwhitemsa.webs.com/), kept me (so far) out of a wheelchair (expected 2010)

by Kathy J White

Ann was in a research trial for Dorxidopa. Knowing she was helping others made he feel better/

by Ann

Doing exercise at the local leasure centre.

by Glenn Beedie

my walker, enabled me to move around outside

by Ann Toth

My faith in God.

by Stan Upchurch

entender melhor essa doença

by Meire

Rest as much as possible

by Fiona

Clonozapan

by Patrick Costigan

Exercihse

by Daniel

Having been an icu and hospice nurse. I understand disease and dying.

by Laura Sequeira

I'm the daughter of an MSA patient. Patience and love seem to be the two best ways to support and help.

by Erin

Group visits with Dad allowed his guests to talk to each other when he couldn't talk one-on-one with them.

by Elizabeth

That there is an active, passionate coalition that is helping tremendously to families in terms of support along with generating funds for research

by Hasan

my faith in God

by Sharon

The MSA FB groups on Facebook

by Kevin Lloyd

Baclofen helps a great deal with spasticity/tremors.

by Sue Dorsey

Amezinium controls orthostatic hypotension

by Yoshimura

Be ready to accept constant change

by Terry

Northera for my lightheadedness and dizziness

by Francis Quade

I have a strong healing circle that includes doctors, therapists, PT, other therapists and my spiritual community

by Cathy

Eating properly - Reduce processed foods, more fruit and vegetable, reduce fast foods etc

by Kay-Maree Longstaff

accept that you have the right to say no to a doctor at any time, and second and third opinions are a good thing

by Aletta

4 meds I would not be without 1) fludrocortisone 2) pyridostigmine 3) bupropion and most recently 4) quetiapine

by Thomas H McVearry