World map of Nail-patella syndrome


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Nail-patella syndrome stories


BEA'S STORY


Views: 680 Feb 21, 2016, 11:35 AM by Bea

MY NPS


I was born with only thumb nails affected and my mom knew it was something genetic from my grandma's side. At 2 I had double hip dysplasia. At 19 was determined to have squared knee caps. My mom had a hysterectomy in her 50s and an xray tech noticed ...

Views: 664 Feb 6, 2016, 11:07 PM by Barb

DANNY'S STORY


No thumbnails hasn't been a huge problem in my life, being male. The elbows have been though. Well, except for that time in 1971 when they kept me from being drafted into the VietNam conflict. 4F'd 10 minutes into the physical down in Detroit. The el...

Views: 617 Feb 6, 2016, 8:54 PM by Danny

NPS


I was born with NPS. We traced it back and apparently I was the first. I ended having kidney disease and having a kidney transplant in February 1975. My son and daughter are also affected. My son has to have a kidney transplant also but as of now my ...

Views: 617 Feb 6, 2016, 2:58 PM by Perry

ME


My story begins with saying that I knew something was wrong at a young age but it was not until I was older that I got diagnosed with NPS. I was a active child, I always had pain in my knees and issues with my teeth as log as I can remember, but noth...

Views: 596 May 21, 2016, 8:29 PM by Hope

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Nail-patella syndrome forum


WHERE IS EVERYONE FROM?


 I am from Texas where is everyone else from ?,do we have anyone else in here from texas?!!!!

Views: 340 May 21, 2016, 7:35 PM by Linda

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