Ramiprill 10mg per day
VERY IMPORTANT! Remember to have your eyes and kidneys checked at least once a year.
Being older and understanding its okay to be different
Keeping stress out of my life.
stay active martial arts weight training dancing
A positive attitude
Regular exams esp eye exams and kidney monitoring.
medical marijuana
My family supports me.
Heat applied to my joints
vitamins?? they kinda help??
Anti Anxiety medicene made my irritable bowel symdrome livable.
Have annual eye tests.
I am happy that what is different about my thumps, knees, elbows, whole body,......... has a name, Nail-Patella Syndrome!
Appropriate weight
Access to highly specialised orthopaedic surgeons
Being diagnosed
Heat Packs help a tonne
I have been diagnosticated with 3 years. Now, I have 21
Keep thin to keep the weight off those knee joints
To avoid arthritis in a young age, don't do anything that makes you feel pain.
Family and friends
eat foods that high in antioxidents
Having health care professionals that care to learn about my condition
Keeping tabs with support groups on social media. exchanging ideas
my sweetie noel
I moved to a lovable small town and they accept me here.
Attend Pain therapy group meetings once a month
its hireditory, so ive never been made to feel different
Had stents inserted in blocked artery in my heart recently
Never use painkillers other than paracetamol, eg. no ibuprofen, NSAIDS. Bad for kidneys.
I am surprised that not many doctors know anything about NPS or heard of it.
Loving parents
Prescribed pain killers & serotonin
Regular massages are a lifesaver
My mum that always fights with me
Be proud of yourself!
Do some exercising and keep your muscles strong to relieve back og joints.
Not wearing tight jeans so my knees don't hurt as much
use coconut oil and work ur joints dont relay on pain pills exercise
Haven't found much to actually make a difference physically
Understanding that many people may be curious so it is a good opportunity to teach them about your condition.
eating right
I don't let what people say tear me down.
Make sure I keep my Dr appts.
physio helps knee pain
Exercise enlarged the muscles in my upper arms and made them more normal looking
Stay active, while respecting your body.
My daughters do not have the symptoms as I have.
Understanding friends