Help us to help more people
  2. Nail-patella syndrome
  3. Advice
Ramiprill 10mg per day
by Nigel
VERY IMPORTANT! Remember to have your eyes and kidneys checked at least once a year.
by Heidi Gry Nielsen
Being older and understanding its okay to be different
by Erin
Keeping stress out of my life.
by Danny
stay active martial arts weight training dancing
by Rhonda
A positive attitude
by Debra R
Regular exams esp eye exams and kidney monitoring.
by Jamie
medical marijuana
by Denise
La relation au sports a été compliquée car la plupart des profs notent en fonction des performances, sans tenir compte du handicap.
by Bertrand
My family supports me.
by Bethany
Heat applied to my joints
by Hope
vitamins?? they kinda help??
by Eleighx
Anti Anxiety medicene made my irritable bowel symdrome livable.
by Sandy
Have annual eye tests.
by Alison
I am happy that what is different about my thumps, knees, elbows, whole body,......... has a name, Nail-Patella Syndrome!
by KathyChastain
Appropriate weight
by H20daly
Access to highly specialised orthopaedic surgeons
by dewexdewex
Being diagnosed
by Lola
Heat Packs help a tonne
by Teganm7
I have been diagnosticated with 3 years. Now, I have 21
by Jose Miguel
Spanish living in Malta
by LuciaM
Keep thin to keep the weight off those knee joints
by Nigel
To avoid arthritis in a young age, don't do anything that makes you feel pain.
by Heidi Gry Nielsen
Family and friends
by Erin
eat foods that high in antioxidents
by Rhonda
Having health care professionals that care to learn about my condition
by Debra R
Keeping tabs with support groups on social media. exchanging ideas
by Jamie
my sweetie noel
by Denise
Avec l'âge, les articulations des genoux deviennent plus douloureuses.
by Bertrand
I moved to a lovable small town and they accept me here.
by Bethany
Attend Pain therapy group meetings once a month
by Hope
its hireditory, so ive never been made to feel different
by Eleighx
Had stents inserted in blocked artery in my heart recently
by Sandy
Never use painkillers other than paracetamol, eg. no ibuprofen, NSAIDS. Bad for kidneys.
by Alison
I am surprised that not many doctors know anything about NPS or heard of it.
by KathyChastain
Loving parents
by dewexdewex
Prescribed pain killers & serotonin
by Lola
Regular massages are a lifesaver
by Teganm7
My mum that always fights with me
by Jose Miguel
I discover my disease after 39 years
by LuciaM
Be proud of yourself!
by Nigel
Do some exercising and keep your muscles strong to relieve back og joints.
by Heidi Gry Nielsen
Not wearing tight jeans so my knees don't hurt as much
by Erin
use coconut oil and work ur joints dont relay on pain pills exercise
by Rhonda
Haven't found much to actually make a difference physically
by Debra R
Understanding that many people may be curious so it is a good opportunity to teach them about your condition.
by Jamie
eating right
by Denise
Il faut surtout bien muscler le dos et travailler sur de bonnes postures avec la colonne vertébrale.
by Bertrand
I don't let what people say tear me down.
by Bethany
Make sure I keep my Dr appts.
by Hope