My Story of Pain

I was born with NPS obviously and was lucky that mum had it so we knew what it was. I wasnt formally diagnosed with it until this year (2018) but grew up 100% knowing I have it. I have the very small knee caps. The extra bones in my elbows. Scoliosis. Arthritis. And Im 22yrs old. My eye sight isn't great and I could rant for ages.

I have suffered pain badly and find the cold weather is the worst for me.

I also am 49kg. I have tried and tried to gain with not much luck. Im not unhealthy just can't gain. Im also red head...pale. so the skinny deformed body with pale skin results in accusations of drugs alot.

Pain wise...always in it and I find Im getting worse with age. I just had to sell my pride and joy car all because I no longer am capable of driving manual with a bad shoulder. This has made my depression quite bad knowing im 22 yet body as old as an 80 year old. But i get there. Day by day. I know im rare and special. I get through life and will take it one day at a time