Neurofibromatosis

> Neurofibromatosis > Stories

Nf1

My husband has NF1 and had radiation for an opticus glioma as a child.

we have 3 kids My oldest girl dosent have NF. My middle girl has NF and has just got diagnosed with a large plexi growing from her neck bilateral on Borg side of her spine down to the lower back and out between her ribs. She has lot of backpain and also her tummy is sore. We are waiting to do an MRI of her belly.

my youngest girl also has NF and has a plexi on her eyelid and had surgery to debulk IT. She also has bilateral OG and did chemo 2010-2011 for 79 weeks. And had a recidive 2014 and just finiched a year of chemo again. She has a bit of visionproblems.

World map of Neurofibromatosis

Find people with Neurofibromatosis through the map. Connect with them and share experiences. Join the Neurofibromatosis community.

Related books

Cancer: Step Outside the Box

Cancer-Step Outside the Box is a “must-have” book that everyone should own. According to Dr. Rashid Buttar, author of The 9 Steps to Keep the Doctor Away, “Ty Bollinger's book, Cancer-Step Outside the Box, is an extraordinarily thorough and courageously well written book, brought to fruition by the dedication of a son for his departed parents.

The Emperor of All Maladies: A Biography of Cancer

Winner of the Pulitzer Prize, and now a documentary from Ken Burns on PBS, The Emperor of All Maladies is a magnificent, profoundly humane “biography” of cancer—from its first documented appearances thousands of years ago through the epic battles in the twentieth century to cure, control, and conquer it to a radical new understanding of its essence.

Proof of Heaven: A Neurosurgeon's Journey into the Afterlife

Near-death experiences, or NDEs, are controversial. Thousands of people have had them, but many in the scientific community have argued that they are impossible. Dr. Eben Alexander was one of those people. A highly trained neurosurgeon who had operated on thousands of brains in the course of his career, Alexander knew that what people of faith call the “soul” is really a product of brain chemistry.

What is the prevalence of Neurofibromatosis?

How is Neurofibromatosis diagnosed?

ICD10 code of Neurofibromatosis and ICD9 code

What is the life expectancy of someone with Neurofibromatosis?

How do I know if I have Neurofibromatosis?