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Niemann-Pick Disease stories
My name is April. I am 34 and live in the San Antonio, Texas area. I was born with Niemann Pick Type B (ASMD). I was diagnosed at Loma Linda in California when I was 2 while in the hospital with Mono. I had multiple surgeries...
Views: 785 May 8, 2017, 5:28 PM by April
My name is Dylan, I am the father of Amber Ashlee Jelsma who passed away on 10/10/2013.
Me chamo Rosangela, sou mãe de uma portadora de NIemann Pick tipo B, ela tem 14 anos, moramos no Brasil.
Ela tem o sintomas desdes os 4 anos de idade, mas somente aos 8 anos tivemos o diagnostico de NPB, desde então não fazemos ...
Views: 366 Jan 27, 2017, 1:37 PM by Rosangela
Haven was diagnosed at 4 mos. with Niemann-Pick Type A. He passed away at 14 mos.
Views: 289 Jun 25, 2017, 10:55 AM by Michelle
Views: 199 Jul 22, 2018, 6:41 AM by Chip
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