Nut Cracker that put upside down the entire life

I've been suffering since 2016. But not continuously. For the first time I've got severe pain in 2016 and it lasted for a half a year. It disappeared by itself. Then the pain came back in 2018. This time it was even more severe and lasted for 8 months. I went through different medical examinations in different countries and in the beginning of 2019 I was "sentenced" to the Nut Cracker syndrome. There is only one specialized hospital in my country (The Netherlands) which takes care about the patients with this rare syndrome. I was examined there and learnt that the hospital cannot help me to install a stent in my left renal vein as the vein is full with commissures. The doctors do not dare stenting me. Meanwhile I've got a short relief from my pain but... unfortunately after 3 months the pain was back. As usually the Nut Cracker pain escalates with each following week. This time it's turned out to be so severe that I cannot work and the only thing that helps me is morfine. I'm just desperate because of the pain and count each "good day". Or better to say I count more or less bearable days. There are no to many....