> Oculopharyngeal muscular dystrophy > Stories

I'm still alive!!!

An Eye Doctor from the Salt Lake City V.A. took one look at me and told me he had seen one case of this condition and told me to get a DNA test. I did and the test came back that I had this kind of M.D.
When I found out that I had Muscular Dystrophy I thought that my live was ending. Then I remembered
those friends that I lost in the Nam. I was lucky, I was still breathing. I couldn't let this thing beat me without a fight. I had to remain positive for my family and those I lost in that hell hole. I tell my self and my many doctors at least I'm still breathing. Some days it's hard. The pain kicks my butt. I refuse to take opioids. A couple years
ago I tried medical marijuana( gummies). It helped a whole lot. If I could make a recommendation to those with these medical conditions, I would tell them to stay positive.

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